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        <rdfs:label>Patient Reported Outcomes Measurement Information System (PROMIS)</rdfs:label>
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        <ns3:IAO_0000115>A project to develop standards for the collection and analysis of patient-reported health status data using a system of highly reliable, precise measures for physical, mental, and social well-being. Patients are asked a series of rigorously reviewed questions covering common domains and metrics across differing conditions and treatments. The questions can be administered in short forms or adaptively through computerized adaptive testing and reports can be generated to allow clinicians to better understand how treatments might affect the quality of life of their patients.</ns3:IAO_0000115>
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        <dc:source>Dampier C, Barry V, Gross HE, Lui Y, Thornburg CD, DeWalt DA, Reeve BB. (2016). Initial Evaluation of the Pediatric PROMIS® Health Domains in Children and Adolescents With Sickle Cell Disease. Pediatric Blood &amp; Cancer. Feb 19. doi: 10.1002/pbc.25944.</dc:source>
        <dc:source>Bevans, M., Ross, A., &amp; Cella, D. (2014). Patient-Reported Outcomes Measurement Information System (PROMIS): Efficient, standardized tools to measure self-reported health and quality of life. Nursing Outlook, 62, 339-345.</dc:source>
        <dc:source>DeWitt, E. M., Barnett, K., Farrell, J., Revicki, D., Carle, A., Cook, K., Sherry, D. D. (2014). A164: Development of pediatric item banks to measure pain behavior in the Patient-Reported Outcomes Measurement Information System. Arthritis &amp; Rheumatology, 66(Suppl. 11), S212-S2121.</dc:source>
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