has essential measure Adult Sickle Cell Quality-of-Life Measurement Information System (ASCQ-Me) It includes questions that enable adults with SCD to describe their functioning and well-being. Its measures are available as 5 item short forms or can be administered as computer adaptive tests. Measures include: Pain Impact; Stiffness Impact (5-item short form); Sleep Impact; Social Functioning Impact; Emotional Impact; Pain Episodes; and Pain Frequency. A patient-reported outcome measurement system designed to evaluate and monitor the physical, mental, and social well-being of adults with sickle cell disease. Sufficient Keller SD, Yang M, Treadwell MJ, Werner EM, Hassell KL (2014).Patient reports of health outcome for adults living with sickle cell disease: development and testing of the ASCQ-Me item banks. Health and Quality of Life Outcomes,12,125. Adult Sickle Cell Quality-of-Life Measurement Information System ASCQ-Me 18 years and older Clinic Patients (Adults with SCD) NCIT:C154481 Rigor in development, using modern measurement theory and aligned with PROMIS measurement development. no Self Spanish; Portuguese Adult Sickle Cell Quality of Life Measurement Information System SCDO:0000027 This measure can be used to track health status and treatment outcomes and understand the health care requirements of patients with chronic conditions, such as sickle cell disease (SCD). PhenX protocol: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) #820201 Cross-cultural adaptation underway in Brazil. ASCQ-Me's development using modern measurement theory facilitates cross cultural adaptation. Gender Current Age Quality of Life in Sickle Cell Disease Measure