has essential measure Clinical or Research Assessment Questionnaire Current Age Measure of Frequency of Sickle Cell Pain Episodes PhenX protocol: Frequency of Sickle Cell Pain Episodes Per Year #830101 Suggest update to label in PhenX as we have done here because we have used "Frequency of Sickle Cell Pain Episodes Per Year" for the Diagnostic Instrument Measurement. A questionnaire to capture the frequency of acute pain episodes within a defined time frame due to sickle cell disease (SCD). It includes three self-administered questions from the Cooperative Study of Sickle Cell Disease (CSSCD) that capture number of painful episodes that required visits to the emergency room or hospital or interfered with daily activities. phenX:830100 Suggest update to label Quality of Life Measure Diagnostic Instrument