Quality of Life Measure Sickness Impact Profile (SIP) Few but definitions not specific enough A generic measure used to evaluate the impact of SCD on both physical and emotional functioning of an affected person. SIP is designed to measure perceived health status and to be used as an outcome measure for evaluation, program planning, and policy formation related to health care. It is designed in such a way as to reflect sensitivity to changes and/or differences in health status and to be applicable across a broad range of types and severities of the SCD illness, as well as different demographic and cultural groups. http://qol.thoracic.org/sections/instruments/pt/pages/sick.html http://link.springer.com/referenceworkentry/10.1007%2F978-0-387-79948-3_1833 Sickness Impact Profile Too specific to SCD to be included in other ontologies. These annotation properties still required: -- has respondents -- has target population -- selection criteria met -- validated for age ranges -- has cross-cultural adaptation -- freely available -- has translations SIP Bergner M., Bobbitt R.A., Carter W.B. and Gilson B.S. (1981). The Sickness Impact Profile: development and final revision of a health status measure. Medical Care 19,787-805. SCDO